Dear parents of a child diagnosed with Acute Myelogenous Leukemia (AML),
Probably the only thing that could possibly be worse than a cancer diagnosis for yourself is hearing these words about your child. My son, Matt, was 18 when he was diagnosed on April 8, 2008. After eight grueling months on treatment (six in the hospital), I am happy to say that Matt, now 20, is well and life has returned to normal.
If you haven't already found it, I would direct you to the website www.CarePages.com. You can read Matt's story (and others) by searching for patient names. I strongly recommend this site- it not only allowed me to keep family and friends up-to-date, but became a journal for the journey we found ourselves thrown into. The messages that people wrote helped us to feel that we were not alone.
If you are sleeping at the hospital, I strongly recommend that you get yourself an Aerobed inflatable mattress. The recliners that the hospital offers parents are ok for a night or two, but they get old quickly when you're living there! I wish you and your child peace, and hope that they will soon be among the survivors of this dreaded disease!
Matt's mom, Karen